Widespread Recruitment Database (WRD)
PLEASE NOTE: Effective immediately, the WRD has discontinued genetic testing for newly consented subjects without previous genetic testing results. Our team still encourages individuals to complete our consent, authorization, and screening forms and join our registry, so we may notify you of any future opportunities to undergo genetic testing or to learn new ways to contribute to PD research. Individuals who provide previous genetic testing results (such as those who are participating in the Fox Insight Genetic Substudy or undergoing commercial 23andMe testing) will still be eligible to undergo genetic counseling.
Welcome to the Indiana University genetic counseling website. We sincerely appreciate your interest in Parkinson’s disease (PD) research. The Indiana University School of Medicine (IU) is seeking to enroll participants in our registry, provide genetic counseling, as needed, and help connect participants to PD research trials. This website will provide you with the information and instructions you will need to determine if this study is right for you.
What is the purpose of this study?
The Widespread Recruitment Database (WRD) serves several purposes. The team is seeking to build a registry of volunteers who are interested in contributing to PD research. As the WRD team learns of new research opportunities, we will contact qualifying members of the registry to highlight new initiatives for which they may qualify.
The WRD also has a team of licensed genetic counselors who are available to review pre-existing genetic testing reports with participants and discuss the implications of their results. Currently, these reports would need to be completed via outside testing, such as through 23andMe testing or a clinical test ordered by your physician, and provided to our team (please see notification above).
In order to determine if you are eligible for the WRD, you will need to complete a few simple steps:
Agree to the terms of the studyCarefully read the Informed Consent document and authorization. At the end of these documents, you will be asked if you have any questions. If you indicate that you have questions, you will be prompted to type your question into the comment box and you will not be able to agree to the terms of the Consent until a study coordinator contacts you.
Provide contact informationYou will be asked to provide information about how we can contact you.
Additional questionsFinally, you will be asked a series of questions. After submission, you will receive an automated email that your responses have been received by our team. If you indicate that you have not undergone genetic screening previously, no additional action is needed and you will remain in our registry and contacted as new research opportunities are available. If you indicate you have completed previous genetic testing , our team will reach out to confirm your information and provide instructions on how to provide a copy of your previous testing report. Once a copy of your existing molecular report is obtained, you will be scheduled to speak with a genetic counselor by phone. After this genetic counseling is completed, you will have the opportunity to learn about PD research opportunities, or you may be contacted about future opportunities as they become available.
If you have any questions during this process, you may also directly contact our team with question by calling 888-830-6299 or emailing email@example.com. If your questions relate to genetic testing, a genetic counselor is available to discuss any questions or concerns you may have throughout the screening process.
Please note: Your personal information will be stored on safe and secure servers and will never be shared.